But they didn't. We felt as if we were in limbo. And I could see, before she even said anything I could see that there was something wrong with the heart. Health professionals use the 18-20 week scan to examine the baby's size and position, and also to check if his/her brain, heart, lungs and other internal organs are developing as expected. This image shows a baby's face and hands at 20 weeks, and gives you an idea of what you'll be able to see at this scan. 26/09/2019 22:46. So he went out for a walk. All women are offered a dating scan, and an 18- 20 week fetal anomaly ultrasound scan, in line with NICE and UK National Screening Committee recommendations. We thought it would all be over very quickly but, in fact, it was another 11 hours before the baby was delivered. The sonographer will be able to tell you the results of the scan at the time. I just feel very unlucky. The weeks since that day have been very weird. The anomaly scan, also called the 20 week scan or mid-pregnancy scan, is used to detect pregnancy irregularities significant in diagnosis of any of the following conditions: In most instances no serious issue will be found during the scan and many parents-to be will come away knowing that all is progressing nicely and, perhaps, having found out . 11 physical conditions (20-week scan) - GOV.UK Public Health England (PHE) created this information on behalf of the NHS. I thought I was going to burst into tears. Thinking back, I don't know how we left without him. I used to think the feeling of your baby kicking inside you and the sight of a foot poking against your skin were the most fantastic things in the world. After she had taken all the measurements, the sonographer told us that she was concerned with the length of the baby's limbs in relation to the head. So at 20 weeks I went for my scan with my husband, with my daughter, to get our photographs. We had so much power, we could decide that this little thing should die. In fact, interestingly enough, going sort of. It was the end of January, very end - about the 29th - I'd gone into, I'd gone into 5 months by then. It is impossible to escape them and each one underlines your loss. She asked me how far gone I thought we were, and if I could have been mistaken. And I assumed my partner would feel the same. No, we really didn't, with hindsight we probably should have, but not at all, it never occurred to us to be worried about it. What were babys measurements at 20 week scan? Never lacking a sense of the dramatic, it felt as if we shared the responsibility for the terrible, dirty act that we had committed. Dont include personal or financial information like your National Insurance number or credit card details. We don't know, but it's not looking good'. Instinctively, did it feel right? Sometimes women were told that the sonographer had found a 'marker' or sign of a chromosomal condition and had to wait for an amniocentesis to confirm the findings. I felt empty, scared, guilty and incredibly heartbroken. On January 18, my baby was born, at 23 weeks - a little boy. This was on the Friday. The baby kicked, blissfully unaware of what I had done. So he was about two weeks smaller than what he should have been. I was another one who did get bad news at the 20 week scan. We understand the real meaning of "shit happens". Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here), tbh, they never give you good news at scans. Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the baby in greater detail. And before they gave me any of the results she asked a colleague to come and told me she wanted to check something, with a colleague, and by then I was getting very concerned because I'd never had that happen before. So we decided to book an early 10 week private scan. My partner tried to remain calm, and at my request rang my mum. The pain was excruciating, but nothing compared to how I felt inside. Or, at the very least, heart problems. So, in the end, we said we would arrange our own funeral. Laura miscarried her twin babies in February. As soon as we arrived, we were shown to this little room. Surely he couldn't have missed anything else that is so serious x. I was becoming numb to the whole process. And how wrong could they be? I was told that while bad news at the 12 w scan is often of the life or death kind, bad news at the 20 week scan is often of the 'needs an operation in childhood' or 'needs to wear a brace for a year' kind. By this point I had stopped bleeding, this caused problems. And I remember, the first thing I remember when something might be wrong, was I saw, I finally, we finally saw an image of the skull on the screen, and there appeared to be a sort of black hole shape in the middle. At the time the same thing had, exactly the same thing had happened to my friend a month before, and her scan was absolutely fine. 15/02/2014 08:02. So when that happened to us I really didn't worry, I thought, you know, it was literally the baby was in awkward position, they couldn't see the heart and that was why. And it was Christmas Eve and at the time I didn't think, the sonographer did spend a little bit of time scanning us and queried my dates several times and then explained that she couldn't quite see the baby's heart properly and would we come back in a couple of days? Some of the other conditions, such as heart defects, are more difficult to see. I felt crushed, I wanted him to at least acknowledge what had been found already. Likely to have serious medical problems all his life. But you could see there was something wrong? And the doctor - because it was a doctor rather then just the, a sonographer or whatever the correct term is - was scanning my wife, and she hovered over the heart of the baby and said, 'Oh there's the heart, we'll come back to that'. I wanted to be a passive patient while the doctor did what he had to do. Many parents were shocked by findings from the 20-week and later scans. So I was, they couldn't actually finish the scan then, the baby was moving around too much, so they couldn't scan the heart and the stomach. And I'm glad I did and she's glad she didn't. Actually you could tell from the brain development as he scanned up through the chambers of the brain, that one quarter of the brain, one chamber was not evident. He suggested he perform an amniocentesis immediately, to rule out any chromosomal problems. So we left it there, and we didn't actually think that there was anything really to worry about after that scan. I can feel my child kick, it responds when he shouts at football - I mean literally, this baby used to dance around whenever he'd like scream at a goal - and there cannot be anything wrong with this child because it's part of us already. I've realised that being a nice person is a luxury some can't afford. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here). There were also two spots on his heart, which were "soft markers" for Down's syndrome. He felt strong and fit and healthy. Find more information and details of support groups on NHS.UK. He had to come to the decision by himself. Anyway we went in for the meeting with the consultant on this particular time, and we'd got to, I was 30 weeks pregnant by then. Yeah, yeah. By my own hand, I had to end the pregnancy. But she told us, she told us, she gave us some more detail, she said, 'There's this, there's a big gap in the brain where there shouldn't be'. So she said, 'Come back on Monday. This one cannot show you anything, that's what's inside your mind. Sometimes a post mortem was needed to confirm the 20-week diagnosis to see if the baby had inherited a genetic problem (such as Fowler syndrome - see 'Resources'). I wanted to let nature take its course. All pregnant women should be given the booklet by their midwife or GP Screening tests for you and your baby by Public Health England, which gives detailed information about the types of scan offered and what they are looking for. The scan was inconclusive, but the size of my little bump was measuring a lot smaller than it should have for 10 weeks. It seemed a very arbitrary system, and so you quite often sat outside in the waiting room for a couple of hours before you actually got to see the consultant, which was, seemed you know, I kind of remember thinking before we went in to see him on the particular day when we found out there was a problem, 'Why are we sitting here? As I waited for the doctor back on the EPU unit. 'Yes, if that's okay with you,' kind of thing, like you do. Can you describe the difference between the scan at this later stage in a pregnancy? I think the whole experience has made me a pretty nasty person. An hour passed and I started to panic. He then told us what the prognosis would mean for the child. I wrote a few things down last night when we were trying to go over things, just to remind myself. We spent the next few weeks in a happy bubble. It's been a heartbreaking nightmare. And, so they sent me home at that stage because they said the specialist wasn't available till the following day, which was awful. I did. And in this instance the scan was very evident that there was something very seriously wrong. The doctor didn't come. We went, I went in to the scanning room and they're quite bland facially anyway, whether everything's fine or not they just look at the screen to start off with and do measurements but I very quickly realised that the woman's demeanour wasn't, even for a bland face, was concerning. I thought surely everything is ok, as they couldn't detect twins the week before. 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. And still we asked to see a, Impact of the 20-week and later specialist scans. My partner was away working and was waiting to hear whether he was having a son or daughter. I think what everyone is saying is that most likely outcome is that there are no problems at all. For example, you may be offered further tests that have a risk of miscarriage. The scan yet again confirmed things were not good, however the sac had grown. Yeah - in, stomach, out. We strongly advise readers not to take drugs that are not prescribed by your qualified healthcare provider. Has anyone been told the sex incorrectly at their 20 week scan? And I knew there was no way out. It felt like a lifetime to reach our 12-week-scan. Although the anomaly scan is often called a 20-week scan, you may have it any time between 18 and 22 weeks, although it's usually done between 18 and 20 weeks. You've had, you've had your Down's Syndrome check and that's okay. . We also use cookies set by other sites to help us deliver content from their services. BabyCenter. By the time I left the hospital, I was in shock. You have rejected additional cookies. And of course some other measurements she needed to take like the width of the skull, which she couldn't take because the fetus was in the wrong position. Because, when you're angry with the world for dealing you such a shit time, you begin to hate the people who populate it. And I can, the words that the scanning member of staff used, "Everything's fine", will stay with me forever. He wanted to talk about it, but I didn't. Some people had underestimated how serious any abnormality found at this stage could be for the baby. And there [sighs] was a very dark patch over one, where the eye socket was, and they didn't know it, in the Edward's babies sometimes the eyes don't develop properly, or it might have been bleeding, they weren't very sure. The clinic advised a follow up scan the week after, to check on progress and to see what to do next. The following is a quote from their report: If the scan reveals either a suspected or confirmed abnormality, the woman should be informed by the sonographer at the time of the scan. I returned to be told they wanted to scan me again, another internal to see exactly what was happening. All my plans were beginning to fall down. For five months my body had known there was something wrong, yet I had felt fantastic. Some parents wondered if it was possible to have the same scan done at 16 weeks rather than 20 weeks. 20-week ultrasound (anomaly scan) - BabyCenter Australia And I'd been on the internet looking up all sorts of things and everything was so negative, it was very depressing, because I thought, 'Well, maybe they've made a mistake, or maybe it's something they can fix, I don't know'. Bad news at 20 week scan, please help. | Mumsnet While some parents understood the clinician's restraint - even when they had to wait an hour or more for a definite diagnosis - others disliked being kept in suspense and wanted to be told what the clinician was thinking. Not a good sign in a hospital consulting room. Specialist scans are performed in specialist fetal units and if clinicians feel that there might be problems scanning will be done up to 32 weeks. There, I would give birth. Baby loss stories I just want to be normal again. The week that followed was an agonising wait. We just couldn't use the words. At that point, I got very not upset but quite sort of strongly severe sort of with the people at the hospital saying, 'Look, you know, that's 24 hours, possibly a 48 hours' wait - that's not something that's tenable. And she sort of got up and walked out of the room and called someone in. Do you have any thoughts about that? Instead, I had to raise a glass of water to my mouth, take a swig and swallow the tablet. No sort of questions about, 'Do you want to know whether it's a boy or a girl?' Some people had underestimated how serious any abnormality found at this stage could be for the baby. But it is a soft marker for Edwards' syndrome. It felt as if we'd gone underground, that we were part of the criminal fraternity. So choroid plexus cysts on their own, no problem, but if there's something else wrong, then that's a problem. After the triple test you stop thinking, you stop thinking that anything can go wrong. It was, 'Oh we'll come back to that'. Being deeply unhappy and kind to others at the same time is nigh on impossible. This might be uncomfortable. During the examination, sonographers need to keep the screen in a position that gives them a good view of your baby. To comment on this thread you need to create a Mumsnet account. The contractions started very quickly and within an hour my waters had broken. . My baby might have Down's syndrome. The termination would be averting a tragedy. Next most likely (but actually in the minority) they identify something which whilst not 100% healthy is treatable. The blood test confirmed it was twins. The only thing you're thinking now is the birth, and what if something goes wrong in the birth? Our nightmare began when I went for my 20-week scan. Within two days I was waiting in my local EPU unit for further tests. Many parents were shocked by findings from the 20-week and later scans. I then had to wait in the room along with many other patients for an hour so they could observe me. He bluntly told me, he wasn't interested in whatever was seen before, he was only going to go by what he saw that day. Again the legs were quite twisted, they said that the baby's sternum was very short - things weren't in proportion you know - the head was quite large, the neck was very thick, there wasn't really like a neck as such it was just things were kind of - there were lots of things that obviously the consultant could see that we weren't aware of. I felt more informed, and I felt that that was what I needed in my head to see you know, that I've got to accept now that this, all these things are real on the screen and this was really my baby that's suffering all these things [sighs], but I was sad as well. And at the end of the day however much we talked about it - that it was going to be the two of us to make the decision and me to actually you know, go through it and decide that that was what was going to happen for him - and I just, I didn't want to do it. But it's bloody hard being miserable the whole time. We left for home feeling completely numb. In a small number of cases some very serious conditions are found. The ultimate betrayal. However, at the time neither of us could articulate that. If an abnormality is confirmed or suspected, referral is usually required, although some obvious major fetal abnormalities, such as anencephaly, may not require a second opinion (this should be decided by local guidelines). We needed closure, to allow us to grieve properly. Several women had taken young children with them to the 20-week scan because they expected to see 'nice pictures of the baby'. Mm-hm. That he - I think I was 21 weeks and 3 days, and he was coming up at 19 weeks and 4 days, or something like that. The thing about that which I felt was difficult is that we could tell when being scanned that there was something very seriously wrong. I then found that soft markers means 'vague unproven suggestion of a link', and that echogenic locii are small concentrations of calcium which are incredibly common and harmless. We must have had one before that as well, we must have had one before that, but it came back quite normal. Soon, the doctor came and inserted the tablets that would induce labour. And nothing prepares you at all. All the hopes, dreams, and plans we made with our little bumps has been taken away from us. It's quite common, perhaps 1 in 10 they find these, and within a few weeks they disappear. The results come in stages. You could see her face, and the major aspect that was, that was the indication of what was wrong was the thickening at the back of the neck in this instance, which, when you're looking at a fetus is, you know, sort of half a centimetre thicker or not is completely immaterial to me, and would look like a completely normal neck, but from the point of view of the consultant was severely abnormal. And so began the most bizarre day of my life. Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the baby in greater detail. It is a noise that will stay with me for ever. I think at that time she had come to terms better with the fact that this baby was going to be terminated, and I don't think I was quite there. So at least then we went to that next stage prepared for the worst really. For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. There was a very marked lack of amniotic fluid which made it difficult, not even for the scanners to see, that made the picture of the scan look very, very different. Away you go'. So we decided to book an early 10 week private scan. And shortly after that, that scan we'd finished and the consultant leant back and said, 'I'm afraid we have some problems here'. Instead, we were shown to a room slightly away from the rest of the ward and the midwife stayed with us to talk through what was going to happen. And with each one we had to have the same conversations. I would be put to sleep, and when I woke up I wouldn't be pregnant any more. Try to relax and take it easy. Some people we talked to had not had a 18-20-week scan, either because their babies' abnormalities had been detected by earlier . And you could see, where you should have a picture of 4 chambers, you could really see 2. The chances that anything bad will be discovered are v v small. Enough for two weeks after he had been cremated. And again, you know, you read all the books and it tells you 'this is the diagnostics', but after a while you don't hear that inside your head any more No, no, no, I'm fine - because everything's perfect. I broke down and started hitting my disgusting body that had done this. The scan will look in detail at your babys bones, heart, brain, spinal cord, face, kidneys and abdomen. I felt the dread run through me. As you felt that, you know, it was probably going to show lots of problems and it just wasn't what we wanted, but at the same time we needed to sort of see it and, we needed to prove it I suppose. It was probably all right but hadn't had any fluid in it at the moment. And even at that early stage it was beginning to sink in that there was something really not right. I didn't really know what that was. The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). And having read, since read my information on Edwards' syndrome, a good 85 per cent have problems with the heart. These were said to be soft markers fo a range of trisomies, 2 of which were incompatible with life. And also what the prognosis would mean for our two year old: now a very happy child, he would have a completely different childhood with such an ill sibling. And as, and as soon as I saw the pictures of the scan, having had two normal pregnancies, even I could see that there was a marked contrast between this pregnancy and the pictures that I'd had previously. I was given a leaflet and told to return four days later to see the consultant. Back on the EPU unit, a doctor organised for me to be admitted into the ward, to take the medical management under supervision as the sac was now to big for me to safely miscarry on my own at home. You know there's always that bit on the bottom of the thing, 'These are diagnostics, do not bring other children,' - blah, blah, blah.. it's not, you know, it's not a family outing kind of thing, but it feels like it.
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